YORIAU Symposium
A forum for continuously deepening patient and public involvement and exploring healthcare issues through "new perspectives"
We hold discussions from fresh perspectives to further advance patient and public involvement (PPI).
The forum takes place once or twice a year in a hybrid format, with both in-person and online participation available
Regarding the Handling of Recordings and Materials
YORIAU Symposium
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Access to seminar recordings is available for four weeks from the date of the seminar and is limited to registered participants.
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In accordance with the YORIAILab Guidelines for the Use of Seminar Recordings, recordings will be made publicly available six months after the seminar date to support learning and knowledge sharing. Only the presentation portion of the recording will be released; Q&A sessions and discussion segments will not be included.
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When a recording is available for viewing, a ▶ will appear on the right-hand side of the seminar information section.
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Access to presentation materials is limited to YORIAILab members. Non-members who wish to obtain materials are encouraged to contact us individually for consideration.
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If you reuse all or part of any publicly available seminar recording or presentation materials, please clearly indicate the source URL of the original recording. Thank you for your understanding and cooperation.
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2nd Friday, December 12, 2025 15:00-19:30
Tokyo Midtown Design Hub International Design Liaison Center & Zoom Meeting
Media and Patient and Public Involvement (PPI): Exploring the Role and Value of the Media as a Partner in Advancing PPI to Shape the Future of Healthcare
Patient and Public Involvement (PPI) in healthcare is increasingly recognized as important among stakeholders involved in medicines development, medical research, and healthcare policy. Efforts to implement PPI are also steadily advancing. However, opportunities for PPI to be discussed in the broader public sphere remain limited, and many people still have little opportunity to learn what PPI is and why it matters.
In today’s highly digitalized society, access to information has become easier than ever. At the same time, people are increasingly exposed to information that aligns with their existing interests and preferences. Moreover, not all citizens are equally able to access or utilize digital technologies, and significant information gaps continue to exist.
Against this backdrop, public communication plays a critical role in creating a society where all citizens can participate in discussions and decision-making related to healthcare and health. In particular, the media serves as an essential bridge between healthcare and society. As a partner in advancing PPI, the media has an important role to play in fostering understanding, encouraging participation, and helping shape the future of healthcare through greater collaboration among all stakeholders.
1st April 25, 2025 (Friday) 15:00-19:30
AP Tokyo Yaesu, 10th Floor Conference Room W & Zoom Webinar
Patient Communities and Co-Creation in the Digital Age: The Value, Challenges, and Future of Online Communities for People with Lived Experience
In today’s rapidly evolving digital society, patient communities are undergoing significant transformation. Alongside traditional face-to-face forms of health communication, virtual engagement has become increasingly common, and digital platforms are now widely accepted by patients and members of the public as important channels for connection, information sharing, and collaboration.
At the same time, patient engagement in medicines development has advanced considerably, with a growing number of practical examples emerging across the healthcare ecosystem. Efforts to systematically capture patients’ experiences and perspectives and incorporate them into the development of treatments that better meet patients’ needs are becoming more sophisticated. To generate meaningful Patient Experience Data (PED) and use it as evidence for decision-making across the healthcare continuum, ongoing and sustained co-creation with patients is essential.
Against this backdrop, we believe the time has come to create a dedicated forum to discuss the value, challenges, and future potential of online communities for people with lived experience, which have become increasingly important tools for health communication. With this goal in mind, we are pleased to host the inaugural YORIAU Symposium.
